DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneMPSvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: News & Meetings
Latest announcements and gatherings
Terri L. Klein Received the WORLDSymposium 2021 Patient Advocate Leader (PAL) Award
Terri is a founding member of the Mucolipidosis Research Collaborative Network. Recently formed in 2019, this novel group of scientists, researchers, clinicians, and patient advocates are working in tandem to discover the scientific answers to provide therapies for ML II/III. She is a wife and mother of four, including Jennifer (28), her youngest that suffers from ML III.
Terri was presented with the WORLDSymposium 2021 Patient Advocate Leader Award on Tuesday, February 9, 2021.
Related Content
-
people & placesCure MucolipidosisCure Mucolipidosis is a non-profit organ...
-
Community CenterCanadian MPS Society – TwitterThe Canadian Society for Mucopolysacchar...
-
people & placesMPS Society UKThe MPS Society provides support across ...
-
Community CenterI Want to Live in the Moment While There’s Still TimeMy daughter Abby has Sanfilippo syndrome...
-
Community CenterNational MPS Society – TwitterNational MPS Society is a nonprofit orga...
-
Community CenterCure Mucolipidosis – FacebookCure Mucolipidosis is a not-for-profit o...
-
people & placesCure Sanfilippo FoundationCure Sanfilippo Foundation is a Not-for-...
send a message
Reset password
password changed successfully!
please log in with your email address and new password.
your activation key expired
this confirmation key has expired. please try to log in again or resend confirmation email.
confirmation email sent
a confirmation email has been sent to your inbox. click the link in the email to activate your account.
can't find the email? be sure to check your spam folder.
password reset email sent
an email has been sent to you with a link to reset your password.
can't find the email? be sure to check your spam folder.
If you are a doctor or other qualified health care professional, you should not offer any medical advice or treatment on our Sites, nor should you allow the content of our Sites to substitute for your own medical judgment. Please thoroughly review the information provided on our Sites before deciding whether any of the products, services, or treatments therein are right for you or others.
your account is now activated!
Log in
This feature is only available to members.
you haven't confirmed your email address yet. resend confirmation email
Want to find the info you need faster?
The symptoms of Mucopolysaccharidosis and the treatments that are available vary depending on which type of Mucopolysaccharidosis a patient has been diagnosed with. Select which type you want to learn more about, and can highlight the resources that are most relevant to your MPS/ML type.
Not now